Readings: Week 15

Legal and Ethical Issues

Objectives and Competencies for this session:

Pre-class Preparation:

Readings:

1. de Koning M, Meyer B, Moors A, Pels P. 2019. Guidelines for anthropological research: Data management, ethics, and integrity. Ethnography. 20(2):170-174. [read online] or [download pdf]

2. Katie Fortney, UC Office of Scholarly Communication. 2016. “Who owns your data?” [read online] or [download pdf]

3. Goodluck, K. 2020. Indigenous data sovereignty shakes up research. High Country News. [read online] or [download pdf]

4. Woodbury, R. B., Beans, J. A., Hiratsuka, V. Y., & Burke, W. (2019). Data Management in Health-Related Research Involving Indigenous Communities in the United States and Canada: A Scoping Review. Frontiers in genetics, 10, 942. [read online] or [download pdf]

• Videos:

Watch:

1. “The Text Wash team discusses text anonymization” [link]; related blog post [link]

Quick Overview Lecture by EB (Links to an external site.)

NIH:Statistical methods for protecting data confidentiality

Patricia Jenkinson Video Seminar: Ethics in Human Subject Research

U.S. Department of Health and Human Services: Informed Consent Overview

Australian Council for International Development (ACFID): Principles and Guidelines for Ethical Research and Evaluation in Development

OPTIONAL: An Overview of NIH Policies on Human Subjects Research (I recommend you listen at 1.75x speed).